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NIH Considering New Genomic Data Sharing Policies

The National Institutes of Health plans to update its policies on sharing genomic and sequence-related data, and is now discussing changes that could affect how data sets are used, organized, and prioritized, how they are made available, and how privacy is protected.

The plans were spurred by the NIH's conclusion that the value of sequence-based genomic data can be realized by making sequence and other genomic and phenotypic data "available as broadly as possible to a wide range of scientific investigators," NIH said this week in a notice to the genomics research community.

One of NIH's aims is to encourage investigators who are funded by the institutes and internal review boards to consider adopting broad sharing of sequence and related data as they develop informed consent processes and documents for studies using human sequence data.

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